Liams Fontan Surgery Update

Sorry no updates, I didnt have a computer in the hospital, Liam had his Fontan it was about 6 hours, everything went great they said he woke up in the OR and was fighting them off to get tubes out!! It took 7 people to hold him down, and he almost ripped his Foley Catheter out so they removed it before he did get to it and caused a whole other set of problems. Liams Brother and Sisters and Nana and Papa were there at the hospital to support us. about 6 hours later Liam had a siezure that lasted no longer than a minute, they came up to do a brain scan to find out that Liam had a Brain Bleed. They started Liam on siezure medicine and did EEG to make sure he didn't have any sleeping siezures.. When the results came back they said his brain patterns were very slow and showed more siezures so they switched his siezsure medicine to KEPPRA, and did another EEG to make sure that they stopped which they did. Liam wouldnt open his eyes or talk for days, they were getting very worried, Finally after a week Liam woke up but was not talking in full sentences and the words he was saying were very slurred, he said mommy fine but daddy was DOLLY which he could say just fine before surgery as well as apple juice which he was saying Chochle CHU and we couldnt understand. It took a few more EEGS to make sure nothing else was going on, they said it was just from the Swelling in his brain. He recovered thank god, Liams also has a paralyzed lung and diaphram on the right side so he was on oxygen after surgery. Liam was gettignn dishcharged the first week of November, but that Monday he had pain in his leg due to a huge blood clot so Liam is on Coumaden and will remain until the clot is gone and the Hole they put in his heart closes up. So we didnt get home until right before Thanksgiving, Im so grateful for everyone who still follows this blog, Ihave been busy since we have been home and i really should have double checked his sight Sooo sorry for not posting this it saved as draft and i had no clue! Liam is doing well both Heart and Brain.