SO SORRY FOR NOT POSTING, ITS JUST SO EASY NOT TO POST ANYMORE BECAUSE LIAM IS DOING AWESOME! Liam went to his Heart Cathe and said he was STELLAR! We did not have to spend the night over. They said he was still so little for the 3rd stage Surgery the FONTAN. They want him to gain 5 pounds by atleast July , that is when they want to do his surgery. He weighed 22 pounds in February for his Heart Cathe, I don't know what he weighs now but we have been giving him more cookies and fattening stuff, plus he has been throwing up meals atleast once a day i think because he is so full ughh , Im hoping he has atleast gained some weight, he has filled out more but still so tiny. He finally fits in 18 month Clothes and still wears a # 3 diaper. But he can talk sooooooooooooooooo good! He says sentences and it just amazes everyone someone so tiny can speak so much and clearly! He knows his ABC's and alot of other songs. He knows some of his colors, Orange and Blue and Purple and Yellow, almost has green mixes it up with Yellow but thats ok he is on his way!! He can count up to 18 then skips 19 and says 20!!!! He is so smart and amazes me everyday, here are all the pictures of Liam i have promised and never did! ENJOY, THANK YOU EVERYONE FOR STILL CHECKING UP ON LIAM, I AM SO BLESSED TO HAVE YOU GUYS CARE SO MUCH AND IN OUR LIVES. His bday pic disapeared on us so atleast i got his cake. here are pictures from October thru now
2 comments:
What wonderful news! The kids are getting so big. Hard to believe the Fontans are going to happen in the next 12 months. Time sure goes fast. Thanks for the update and the pictures. Hes such a cutie.
Hugs
Melynda and Mariska
Hows the weight gain going? I missed over hes still in 18month clothing. Hes tiny I just started buying 3T for Misky. Mariska has a heart buddy a 6months younger who has only gain 2 pounds in the past year. yikes. I'll take slow and steady any day.
I havent updated our blog for the pure fact I cant bring my self to. so heres a mini one for you. Her cath went really smooth. They we're worried about the function and the Tricuspis valve (the ones inbetween the two chambers had to look it up lol) It looked better on the cath then the ECHO which is awesome.
Her card wanted to talk to the others and see what they think as far as being a good canidate for the fontan. Well shes not... our boat left us and now we have to get a new one.
We have talked to the transplant team on the phone and go in to see them and do some blood work on june 3rd. Think We'll be added to the transplant list and then the waiting starts the sicking feeling of waiting for a thing like this.
I known this day would be here soon just not on my baby. Its been hard to take like finding out she has HLHS all over again.
Has Liam started to slow down a little? I've started to see it in Misky over the last few months. Since her echo she has been so clingy and needing help going up stairs (after the 4th or so time going up and down them haha)
I'm sure she'll have a new heart but the end of the year.. or hope.? Either way it will happen. I type this all with a heavy heart and moist eye. I know things will work out for the best =)
Heart Hugs
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