Merry Christmas

Merry Christmas! Its been a while since i posted, but we have been busy! Liam has tongue tie we found out at ST not even 5 min with her and she caught it. But we aren't going to do anything right now, we are going to wait until he is older and see if it causes any speech problems. Liam enjoyed Christmas and got a lot of neat gifts. We missed the deadline for our Christmas Picture Cards to be sent out by Christmas so we won't be able to send them out until after the New Year. We hope everyone had a great Christmas. We had our family over Christmas day for dinner and presents it was very nice. Its been a Blessed year with Liam's second surgery behind us and enjoying Liam everyday. We are so thankful for all the cards we received from our families and friends and Heart Family friends. Liam enjoyed his Christmas. Liam had his 15 month check up he is still 17 pounds, we thought he would have gained since all the xmas cookies and crackers he has been eating! Yes he is starting to finally get the hang of eating! I will post more pictures soon :)

Liam Update

I hope everyone had a Happy Thanksgiving! We had family over and cooked a wonderful meal and had a great time with our family. We are so Thankful for everything, God, Family, Friends, The doctors and Nurses, everyones continued prayers and support and donations to Liam. We appreciate everything. Its been hard for me to get on the computer and do updates, since now my week Consist of Running Liam to PT Monday and Tuesday and Speech on Wednesday. Today he has after his ST to get his RSV shot, so he is not going to be a happy camper. The Holidays are just around the corner and its been busy busy busy. Liam has been doing really awesome in his PT. He has only gone for 2 weeks and we have him standing not on his own but wanting to stand for a few min with a little help and his Therapist is just so awesome. Liam is now sitting on his own he is learning to put his hands down not to fall but he just cant hold himself up just yet but he is learning and getting stronger! Liam has his first ST today well 2nd, last week was just to getting information on him, she will be working with him to start learning how to eat number 3 foods without choking, I got Liam a safty net ring, which you can put fruit and food in and they can't choke but they can get the tast through the net and it teaches him how to chew, i cut up some apples and he just chews away. he loves it and i don't have to worry about him choking. Liam's Vocabulary is growing, he says mommy,daddy, doggy, Hi,byebye, all gone, cookie, ba ba,and he is trying to say Sponge Bob! He loves the show. He can make animal noises when i ask him what a monkey, donkey,snake make he makes the noises its so cute, I know im probably missing something but i will update it in the next post. These pictures are of Liam playing with his talking chair and table, sitting and standing a little and having fun!

Physical Therapy Update

Liam had his Physical Therapy Appointment yesterday. It went really well. She did a lot of neat things with him to get him to play on the floor. Liam is very flexible and I forgot to mention in the last update that at his 1 year doctor appointment the peditrician thinks he has what Kyra Hope and Aryanna have. the Benign Congenital Ligament Laxity, which means their joints are really loose. Liam is so flexible that he can bend all his fingers backwards and his feet too. His legs bend all the way behind his head also just like Kyra Hope was, So the Physical Therapist said its going to take longer to work with him since he has this condition she also made these shorts out of an ace bandage that will constrict his legs from going over his head and that will teach him fast how to use his legs and get stronger instead of being so flexible. Liam has a lot of work ahead of him. She worked with him for a full hour and poor Liam looked worked but she has decided that Monday and Tuesdays will be good for 30 min sessions until he can build up to the hour. Liam looked like he was having fun playing with all the new toys and he did good for 45 min but was starting to get upset when he was tiring out. We are so happy that he is getting the help he needs so he can start being a "Normal Baby" I just have been so sad for him not being able to be crawl after his brother and sisters and he just watches and laughs when they run by. I can't wait for the day he is the one running by. Liam will be having Speach Therapy also i am waiting for that Therapist to call to set an appointment, I will update on that too. I posted more pictures of Liam i forgot to post in the last update.

FINALLY A UPDATE

I am so sorry its been a while, we have been so busy and i hardly have time to sit and update. Liam has been doing really well. He was sick on Halloween with a fever but i think it was from the 4 shots he got at his 1 year old check up earlier that morning. I will post his Halloween pictures soon.Liam had a Cardiology appt on October 24th and everything looks good, She didn't get a good look at the Glenn because he was moving around too much but she said he is doing well and his 02 sats are running 86 to 91. Liam had his RSV shot on November 5th and will get them monthly thru the RSV season, his next RSV shot is December 3rd. He will be getting his Flu shot on Wednesday. My poor baby and all his shots. Liam weighs 16 pounds and 2 ounces. Liam's first tooth popped thru on the bottom on Friday October 24th he is soo cute and another next to it looks like it will be in soon. Liam isn't cranky with the teeth but he is just not wanting to eat which is very frustrating to us. I have tried number 3 foods so he can get use to the texture but he really isn't ready to eat it since he chokes on it and throws everything up that he eats. I FINALLY GOT A PHYSICAL THERAPIST FOR LIAM!!! He is going Tomorrow at 9 am. I am soo happy. He was suppose to be there today at 9 am but i wrote down the wrong time for his appt so tomorrow is his first day. He will be going Monday and Tuesday every week or more after she evaluates him tomorrow. Liam can sit up but can't reach over to grab things or he will fall, I am hoping that withthis PT he can get stronger and start crawling before the summer. I want to Apologize for not posting sooner but after Liam's 1st Birthday we had our other childrens birthday to get ready for and we have been busy since. I am thankful that you leave comments and prayers still for Liam. These pictures are of Liam of the last couple months for his big 1st bday and some other pictures afterwards . I will be updating on his PT/ST appointment and other updates. I almost forgot, Liam is getting a big Vocabulary, he says Doggy, Baby, Ba Ba, ALL GONE!!! Whenever he finishes eating we say all gone and he says that when he doesn't want anymore food. He makes animal noises for a monkey and he says HEEEE HAW FOR A DONKEY ITS SOO CUTE! He can say clap as he claps his hands and he loves music and will hum to it if he hears some. Liam is so amazing and puts a smile on my face everyday.

HAPPY 1ST BIRTHDAY

Today is Liam's 1st birthday. I can't believe how fast this year has gone, but when you think back on the birth and the surgeries how slow it went then. We are still in shock that he is turning 1. Last year we really didn't know if Liam would be here with us today and having faith in God and prayers from friends and family and from other Heart Families we met online and in person we would have never had made it through all this. We now know their is hope for these children more now than 20 years ago, We have wanted to get in the CHD Community and start donating for CHD Awareness, so we are designing shirts that you can buy and all proceeds will be going to a CHD Charity, If you are interested just leave a response and when we finish the shirts we will post what they look like and how much and i will have the CHD charity Posted that the money will go to. But right now i have a BIG 1 YEAR OLD BIRTHDAY PARTY TOGETHER before i can start working on the shirts. Actually i have 3 birthday parties to get together lol Liams older sister Aryanna's birthday is tomorrow she will be turning 7 and then Friday is Jakes 3rd Birthday. We are thankful for all the friends and family who continue to pray and leave comments for Liam.

We will be having a big party for Liam on Saturday. I will be taking a lot of pictures and post them with his party update. This year has really been a hard one for us, and we take our emotions we still have day by day. We are so Blessed to have Liam in our life and that we can post every milestone that he has accomplished.

UPDATE

Sorry so long for an update, i have been having computer problems and not able to get to get to this website and others to update. Liam has been doing well, he hasn't had any doctor visits or any complications. We are coming up on Liam's 1st Birthday in 2 weeks September 24th, we will be having a big party for him on the 27th so i will definitely be updating then and showing off pictures. I am going to try to post some recent pictures of Liam since i have been having problems with my computer i hope they load. We were very lucky to have not had any of those hurricanes, Tropical Storm Hannah did stay on the coast and we got a few days of wind and rain but nothing we couldn't handle. We were ready to leave if Hurricane Ike would have come through, we had ordered all Liams medicines and packed just incase, it was looking pretty scary for us for a few days but i am glad it turned away. Unfortunatley it turned up towards the coast and thru texas where i have met alot of Heart Families online and a few were in the Hospital waiting for their children to go thru the Glenn or the 3rd stage surgery the Fontan. We definitely prayed for Texas and the families and are glad that the families we do know are fine.

UPDATE

Hi, sorry about not posting in over a month. I didn't have any time to get on the computer, since our summer was ending so soon after July went by so fast. The kids are back at school August 18th and I have been trying to adjust without having all the kids home. Liam has had no issues at all this summer and doing great. We had gone on a little vacation to visit my brother and wife and my niece and nephews. We also Visited my best friend and her family who lives only 15 min down the street It was only a 3 hour drive and we had fun and the girls went with Nana and Papa to Universal and parks and had a great time. Liam is growing so fast, he went to his Pediatrician August 1st and he is 26 inches and he has hit the 15 pound mark yayy. Liam hasn't had any physical therapy sessions in a while, so i am trying to get him a new pt that i am happier with that someone had told me about. Liam is now rolling from his tummy to his back and he is also starting to wave hi and bye, and he also has started saying Hi!!!! He is 11 months this sunday and can't believe how fast this year has gone. I want to thank everyone for their continued prayers and comments on Liam's website. Again sorry for no updates. I will be posting alot of pictures soon, here is a couple to see how much he has grown over the summer!!! And a group picture of Liam's older brother and sisters, Christin, Kyra Hope, Aryanna and Jake.
OO Liam has a new friend, her name is Sophie and she is a 1 year old black pug, she loves Liam and gives him alot of kisses, and at first he didn't know what to think of all the kisses because our other 2 dogs don't bother him and never have licked him, but he likes her alot!