WEST PALM BEACH

Liam had a pediatric cardiologist appointment this morning in West Palm Beach. She checked him over and we went over his medicines that he takes, she didn't change anything this time, but she said maybe next time she will change the amount he gets. She said for life he will be on this one medicine he takes for his heart called Captiprol. Also I will be seeing her once a month unless something comes up. He is in the upper 80's about 83-87 for oxygen it got to 91 before we left but she marked it down as upper 8o's. Liam was about 92 to 95 in the hospital. His next appointment is November 28th. She said Liam's next surgery depending on how his conduit is doing in the heart and what his oxygen numbers are. So she said the next surgery is going to be 2 to 4 months from now. Hopefully the 4 months!!!!

Home From Miami again..

Liam is doing fine, They said he doesn't have any infections and the suture looked fine even though the sutures dissolved and the skin was still open, they said that was normal. As for him throwing up every meal they told me since he has the reflux he needs to eat small amounts and then burped and then wait 10 min and feed him more and do the same until he is done eating, then hold him for a while upright, i guess we were doing that but having Jake being so demanding its easy to put the baby down and tend to Jake, but now we just have to hold Liam a little longer, which there are no complaints here. I will figure it out some how and Jake loves the baby and has showed no signs of Jealousy at all, so he can wait a few more minutes.

Taking Liam back to the Doctors

Today we are leaving for Miami, we are worried, one of the tube incisions that was below the belly button has opened. We are hoping he its not infected. Not only that Liam is not holding any of his feedings and eating less. We will let you know an update when we get back, I hope they don't keep him, but if they do its for the best. Thanks for the continued prayers.

Miami Trip

Today was Liam's doctor's appointment to see the Surgeon. He Checked Liam's incisions and he has an infection so they prescribed him Keflex antibiotic. They told me he might get an infection so they were not worried and its not too bad it just started so he should be fine.
They want him eating more, he is only eating 35 cc's which is 1 ounce and they want him eating 60 cc's so i guess they want him to fatten up for his next surgery which he said would be at 4months of age to 6 months of age. Now to get him to eat more than he is eating. They want me to make another pediatrician appointment in 2 weeks just to see if he has gained any weight. I am having a problem with him throwing up every time he goes over 35 cc's, I hope he starts eating more so i don't have to supplement formula or have the Feeding tube back in. But I think he will start eating more soon. I will keep you updated for the next doctors appointment which is October 31'st to his Pediatric Cardiologist.

LIAM'S FIRST PEDITRICIAN APPT

Liam went to the doctor. He weighs 7 pounds even so he is trying to catch up to his birth weight which was 7 and a half pounds, they measured him but we were asking questions about his surgery so I never got how much he grew. They didn't get all his medical records from the hospital yet so the doctor basically asked me a bunch of questions about the pregnancy and his birth and then surgery. His Next appointment will be for shots November 21st. He will be going to Miami tomorrow to see Dr Rosenkranz, his Surgeon. I don't see the Pediatric Cardiologist until October 31st, She will be the one deciding on when Liam has his Second Surgery. They said its usually between the age of 3 to 6 months, hopefully he will stay healthy until his 6th month so i don't have to go through all of this again so soon. A new Picture will be up soon

LIAM IS .......

HOME!!!! Thursday morning doctors were telling me that Liam was doing really well and that he was on all of his medicines to go home on. So I was thinking we still had another week or longer! Later they came by and asked about all his doctors i have for him and their phone numbers so he could make appointments for Liam. Later that evening a nurse came by and was asking me questions and started to mention When Liam goes home, and so I asked her since home was being used so much today when was Liam coming home? She Looked at me and said no one told me? She said you are taking Liam home tomorrow!!!! I was really dumbfounded. So Friday we took Liam to the Ronald Mcdonald House and stayed one more night because we were not packed up and ready to leave and plus it was past the time to check out. Saturday Morning Jerry drove me and Liam home at 8 am and he came back to Miami to pack up and check out. I want to thank you for all the continuous prayers for Liam, it means so much to us. We have a lot of doctors appointments this week. He has to see his Pediatric Cardiologist on Wednesday and then Thursday we have to go back down to Miami and see the surgeon that operated on Liam, and then he has his regular Pediatrician appointment. Liam is doing great, he is catching up on all the missed sleep he didn't get in the hospital, since they had to do something to him every 5 to 10 min and all his monitors beeping all the time.
The girls and Jake are so happy that we are home, since they have missed us so much, they came to stay with us at the Ronald Mcdonald house on Fridays Saturdays and then left after dinner on Sunday to go back home for the school week. It feels really good to be home and see all the prayers for our little fighter, Liam. look for more updates after Liam's doctors appointments and I will be posting a new picture of Liam real soon.

Wednesday

On Wednesday, they took the feeding tube out of Liam's nose and he is feeding on his own now. They are giving him the medicine that he will go home with in hopefully a couple weeks.

Great News

Liam was taken off the respirator on Saturday. He's breathing on his own and I got to hold him for the first time. I was able to bottle feed him as well. Sorry there hasn't been more updates, but it is very long nights in the hospital.

Liam's Progress

Liam had a pic line put in yesterday since all his iv's are falling out. They also Extubated(took out his breathing tube) him at 4:15 pm. He did great all day, We finally got to see his face again. About 11pm as i was leaving to go get some rest i noticed him breathing harder and called the doctor in the room, he said he had a little congestion so they ordered him a abuterol treatment, and i stayed until he was done and he was breathing alot better. This morning we came in to see him and they re-intubated(put the tube back in) him. They said that he started breathing harder again and that the congestion is just too much for the air to get into his lungs. We thank everyone for the continuous prayers, comments and concerns.

Pneumonia

Liam had his chest closed on Monday. By Liam's gasses they knew he had some infection but couldn't determine what it was. On Sunday through studies, and cultures they determined that Liam now has pneumonia. He is on the strongest antibiotics to help cure his pneumonia. He will remain on the respirator and is being fed mothers milk through a feeding tube he is only getting 15 cc's every hour . We will keep you updated. Thank you for your prayers.

Chest Closing Update

Liam did great on the procedure to close his chest.He had minor Blood Pressure issues after but they got him stable and it was normal for after this kind of procedure. He is doing well. Now the next few days they are going to let him heal and then We will update on when he will be coming off sedation. Please Continue to Pray for him. Thank You

Surgery

Today is Monday October 1st. Liam is going to have his chest closed today since they kept it open after surgery so he could heal and for no infections. He will be in surgery for a few hours. We ask for your prayers and thank you for them. We will update as soon as possible.