Just a few pics because he is so darn cute!

Just posting some pictures, Liams older sister is sick with a cold and has past it to his other sister, Today Liam is starting to sneeze a bit and same with his other sister, Jake hasn't sneezed, lets just pray that he doesn't get the cold or get sick! He has been so healthy and we are leaving to go on a mini vacation on Friday, i will post pictures, Please pray that Kyra Hope feels better, and liam doesn't get sick and his other sisters and brother. These pictures of Liam is him playing and he says cheese when he puts the toy to his face, he is so cute, and he say OKAY now when you ask him if he wants something or he will say UUUUUMMMM lol Have a great Memorial Day Weekend and i will post Pictures of our Vacation when we get back.

HAPPY MOTHERS DAY

Happy Mother's Day! I hope every Mom had a great day. We sure did, dh cooked for me and my mother and both Brothers and Sil's. It was a great day, and then Mom got to go out with her brothers and sils and parents for a drink at the Intercoastal. It was really a special day. Liam is starting seperation anxiety and will not go to anyone but me or his father!!! When we go out in the stores he keeps his head on my shoulder with his face buried so he can't see anyone. It reminds me of Jake, how he started that and now he is almost 4 and now coming out of his shell and talking to everyone, i just hope that he isn't like that!! Liam says so much now, when something is his he says MINE! or if i ask a question he says MEEEEE, because usually his older sisters say Me i do i do MEEE its really cute. He is calling his paci a BO BO i was trying to figure out what he was asking for but finally after he picked it up and screams BO BO. Liam had his Cardiology appt Wednesday and he didn't see his PC but i met the one that was on call for her and he was very nice. He did an Echo and he said everything looked very good and that his sinusoids looked calm and not so aggressive, he said his color was stellar so i felt really good with that appointment, even though we didnt have his regular doctor. The weather here has been awesome in the high 80's, but this past week in the 90's, so our Summer is kicking off and now i have to figure out what we are going to do now with Liam that the Weather is def to hot for him to go out in. We enjoyed our cool Fall and warm Spring but now its just HOT! Well i guess we will be doing things first thing in the Morning and then home in the afternoon and then out again in the evening. Liam spent time with his Nana yesterday and me and his big brother Jake went to the beach, my back got burned up, but thats because i don't have elastic arms lol Hopefully Liam will get out of this phase because he was such an outgoing boy and now he is just so scared! Maybe if someone has some pointers to help please let me know :) Here are some pictures from Mothers day, I didn't get any with me on my camera, but my mother has mine so i will post those later when she sends them to me. Liam is going on 20 months in 11 days i can't believe how fast time flys by! We are working on Walking with Liam in PT and i am going shoe shopping for him the PT said we need to find a hi top, so i will be on the hunt, he has such little feet!

UPDATE

Hey, sorry so long for an update. We have been so busy. Liam has been doing so much more and its hard for me to sit at the computer and update. Liam still goes to Physical Therapy, now on Tuesdays and Thursdays, and Speech Therapy on Wednesdays. Liam started crawling on his knees about a month ago!! yayyy Liam, and now he can pull himself up to stand and he just started cruising about 2 weeks ago. I am so proud of him. He works really hard at PT and i work with him at home. Now that he is mobile he doesn't want to be in his playpen or held down, and he also shows his Therapist his stubborness, but thats what he is... a fighter!!! Liam is talking so much more, he repeats alot of words, and of course when you want to show it off he makes a liar out of us and he just stares. He is just amazing. Liam has taken off on eating!! He loves to eat Table food, He eats grits, eggs, oatmeal toast pancakes cheerios and he eats Spaghetti and meatballs ,grilled cheese and pizza and other sandwiches and loves his veggies too!! His last RSV shot was April 24th and he weighed 18 and half pounds! He goes to his Cardiologist May 6th and he will have an echo, i hope it all goes well and he will cooperate, now that he is older he fights wth nurses and doctors now for shots and check ups. Liams favorite toys are like his big brothers trains and cars anything that moves with wheels, and anything that he can crawl to and play. Liam loves to give kisses and is the sweetest boy. He keeps us busy with his play as you see i can hardly sit down, but i will definitly keeping up with updates from now on. Enjoy the pictures They are from Easter, his first Haircut, Crawling for the first time, Standing being silly, playing in the play room, there is a heart buddy from February 14th Heart Picnic justin who has HLHS and another update will be soon :)

2009 update

Happy New Year!!! I know that i haven't updated, but my computer was down for about 3 weeks and now i have a quick minute to update. January 5th Liam had his RSV shot. He doesn't go back until March 2nd. He also went to his Cardiology appointment on January 29th. She said he sounded good, she didn't do an echo, but will for his next appointment in May since i had to drive all the way to Port St Lucie to see her because she now works one month and off one month. She has upped a couple of Liam's medicines. He weighs 17 pounds, but is eating really well. Liam is still in Physical Therapy and has showed alot of progress. We have been working on getting him to crawl so he has now started doing a army crawl as before he would just scoot on his belly. That is probably why he isn't putting any weight on since he is working so hard on crawling and standing and all the stuff he does to play. I swear last night i saw him pull himself up on his head and looking upside down and i said something so he sat down, i can't wait to tell his PT about it. He didn't do it again, i think it was something that he did and didn't even think about. February 7-14th was CHD Awareness week. We went to a Heart Picnic on Saturday Feb 14th for the Pediatric Heart house it was really nice. Liam got to meet some hlhs kids and i got to meet families i have met on the HLHS support group that i am in. It was very nice to meet them and their Children. I will be posting pictures soon i have to charge the camera battery. Liam also got a haircut! It was so long and going into his eyes so i took my scissors and started cutting away! those pictures will be posted too Im glad to be back on the computer to update on Liam. I know that people were getting worried since i haven't updated , but i am back on and will be posting pictures tonight.

Merry Christmas

Merry Christmas! Its been a while since i posted, but we have been busy! Liam has tongue tie we found out at ST not even 5 min with her and she caught it. But we aren't going to do anything right now, we are going to wait until he is older and see if it causes any speech problems. Liam enjoyed Christmas and got a lot of neat gifts. We missed the deadline for our Christmas Picture Cards to be sent out by Christmas so we won't be able to send them out until after the New Year. We hope everyone had a great Christmas. We had our family over Christmas day for dinner and presents it was very nice. Its been a Blessed year with Liam's second surgery behind us and enjoying Liam everyday. We are so thankful for all the cards we received from our families and friends and Heart Family friends. Liam enjoyed his Christmas. Liam had his 15 month check up he is still 17 pounds, we thought he would have gained since all the xmas cookies and crackers he has been eating! Yes he is starting to finally get the hang of eating! I will post more pictures soon :)

Liam Update

I hope everyone had a Happy Thanksgiving! We had family over and cooked a wonderful meal and had a great time with our family. We are so Thankful for everything, God, Family, Friends, The doctors and Nurses, everyones continued prayers and support and donations to Liam. We appreciate everything. Its been hard for me to get on the computer and do updates, since now my week Consist of Running Liam to PT Monday and Tuesday and Speech on Wednesday. Today he has after his ST to get his RSV shot, so he is not going to be a happy camper. The Holidays are just around the corner and its been busy busy busy. Liam has been doing really awesome in his PT. He has only gone for 2 weeks and we have him standing not on his own but wanting to stand for a few min with a little help and his Therapist is just so awesome. Liam is now sitting on his own he is learning to put his hands down not to fall but he just cant hold himself up just yet but he is learning and getting stronger! Liam has his first ST today well 2nd, last week was just to getting information on him, she will be working with him to start learning how to eat number 3 foods without choking, I got Liam a safty net ring, which you can put fruit and food in and they can't choke but they can get the tast through the net and it teaches him how to chew, i cut up some apples and he just chews away. he loves it and i don't have to worry about him choking. Liam's Vocabulary is growing, he says mommy,daddy, doggy, Hi,byebye, all gone, cookie, ba ba,and he is trying to say Sponge Bob! He loves the show. He can make animal noises when i ask him what a monkey, donkey,snake make he makes the noises its so cute, I know im probably missing something but i will update it in the next post. These pictures are of Liam playing with his talking chair and table, sitting and standing a little and having fun!

Physical Therapy Update

Liam had his Physical Therapy Appointment yesterday. It went really well. She did a lot of neat things with him to get him to play on the floor. Liam is very flexible and I forgot to mention in the last update that at his 1 year doctor appointment the peditrician thinks he has what Kyra Hope and Aryanna have. the Benign Congenital Ligament Laxity, which means their joints are really loose. Liam is so flexible that he can bend all his fingers backwards and his feet too. His legs bend all the way behind his head also just like Kyra Hope was, So the Physical Therapist said its going to take longer to work with him since he has this condition she also made these shorts out of an ace bandage that will constrict his legs from going over his head and that will teach him fast how to use his legs and get stronger instead of being so flexible. Liam has a lot of work ahead of him. She worked with him for a full hour and poor Liam looked worked but she has decided that Monday and Tuesdays will be good for 30 min sessions until he can build up to the hour. Liam looked like he was having fun playing with all the new toys and he did good for 45 min but was starting to get upset when he was tiring out. We are so happy that he is getting the help he needs so he can start being a "Normal Baby" I just have been so sad for him not being able to be crawl after his brother and sisters and he just watches and laughs when they run by. I can't wait for the day he is the one running by. Liam will be having Speach Therapy also i am waiting for that Therapist to call to set an appointment, I will update on that too. I posted more pictures of Liam i forgot to post in the last update.