UPDATE

Hey, sorry so long for an update. We have been so busy. Liam has been doing so much more and its hard for me to sit at the computer and update. Liam still goes to Physical Therapy, now on Tuesdays and Thursdays, and Speech Therapy on Wednesdays. Liam started crawling on his knees about a month ago!! yayyy Liam, and now he can pull himself up to stand and he just started cruising about 2 weeks ago. I am so proud of him. He works really hard at PT and i work with him at home. Now that he is mobile he doesn't want to be in his playpen or held down, and he also shows his Therapist his stubborness, but thats what he is... a fighter!!! Liam is talking so much more, he repeats alot of words, and of course when you want to show it off he makes a liar out of us and he just stares. He is just amazing. Liam has taken off on eating!! He loves to eat Table food, He eats grits, eggs, oatmeal toast pancakes cheerios and he eats Spaghetti and meatballs ,grilled cheese and pizza and other sandwiches and loves his veggies too!! His last RSV shot was April 24th and he weighed 18 and half pounds! He goes to his Cardiologist May 6th and he will have an echo, i hope it all goes well and he will cooperate, now that he is older he fights wth nurses and doctors now for shots and check ups. Liams favorite toys are like his big brothers trains and cars anything that moves with wheels, and anything that he can crawl to and play. Liam loves to give kisses and is the sweetest boy. He keeps us busy with his play as you see i can hardly sit down, but i will definitly keeping up with updates from now on. Enjoy the pictures They are from Easter, his first Haircut, Crawling for the first time, Standing being silly, playing in the play room, there is a heart buddy from February 14th Heart Picnic justin who has HLHS and another update will be soon :)

2009 update

Happy New Year!!! I know that i haven't updated, but my computer was down for about 3 weeks and now i have a quick minute to update. January 5th Liam had his RSV shot. He doesn't go back until March 2nd. He also went to his Cardiology appointment on January 29th. She said he sounded good, she didn't do an echo, but will for his next appointment in May since i had to drive all the way to Port St Lucie to see her because she now works one month and off one month. She has upped a couple of Liam's medicines. He weighs 17 pounds, but is eating really well. Liam is still in Physical Therapy and has showed alot of progress. We have been working on getting him to crawl so he has now started doing a army crawl as before he would just scoot on his belly. That is probably why he isn't putting any weight on since he is working so hard on crawling and standing and all the stuff he does to play. I swear last night i saw him pull himself up on his head and looking upside down and i said something so he sat down, i can't wait to tell his PT about it. He didn't do it again, i think it was something that he did and didn't even think about. February 7-14th was CHD Awareness week. We went to a Heart Picnic on Saturday Feb 14th for the Pediatric Heart house it was really nice. Liam got to meet some hlhs kids and i got to meet families i have met on the HLHS support group that i am in. It was very nice to meet them and their Children. I will be posting pictures soon i have to charge the camera battery. Liam also got a haircut! It was so long and going into his eyes so i took my scissors and started cutting away! those pictures will be posted too Im glad to be back on the computer to update on Liam. I know that people were getting worried since i haven't updated , but i am back on and will be posting pictures tonight.

Merry Christmas

Merry Christmas! Its been a while since i posted, but we have been busy! Liam has tongue tie we found out at ST not even 5 min with her and she caught it. But we aren't going to do anything right now, we are going to wait until he is older and see if it causes any speech problems. Liam enjoyed Christmas and got a lot of neat gifts. We missed the deadline for our Christmas Picture Cards to be sent out by Christmas so we won't be able to send them out until after the New Year. We hope everyone had a great Christmas. We had our family over Christmas day for dinner and presents it was very nice. Its been a Blessed year with Liam's second surgery behind us and enjoying Liam everyday. We are so thankful for all the cards we received from our families and friends and Heart Family friends. Liam enjoyed his Christmas. Liam had his 15 month check up he is still 17 pounds, we thought he would have gained since all the xmas cookies and crackers he has been eating! Yes he is starting to finally get the hang of eating! I will post more pictures soon :)

Liam Update

I hope everyone had a Happy Thanksgiving! We had family over and cooked a wonderful meal and had a great time with our family. We are so Thankful for everything, God, Family, Friends, The doctors and Nurses, everyones continued prayers and support and donations to Liam. We appreciate everything. Its been hard for me to get on the computer and do updates, since now my week Consist of Running Liam to PT Monday and Tuesday and Speech on Wednesday. Today he has after his ST to get his RSV shot, so he is not going to be a happy camper. The Holidays are just around the corner and its been busy busy busy. Liam has been doing really awesome in his PT. He has only gone for 2 weeks and we have him standing not on his own but wanting to stand for a few min with a little help and his Therapist is just so awesome. Liam is now sitting on his own he is learning to put his hands down not to fall but he just cant hold himself up just yet but he is learning and getting stronger! Liam has his first ST today well 2nd, last week was just to getting information on him, she will be working with him to start learning how to eat number 3 foods without choking, I got Liam a safty net ring, which you can put fruit and food in and they can't choke but they can get the tast through the net and it teaches him how to chew, i cut up some apples and he just chews away. he loves it and i don't have to worry about him choking. Liam's Vocabulary is growing, he says mommy,daddy, doggy, Hi,byebye, all gone, cookie, ba ba,and he is trying to say Sponge Bob! He loves the show. He can make animal noises when i ask him what a monkey, donkey,snake make he makes the noises its so cute, I know im probably missing something but i will update it in the next post. These pictures are of Liam playing with his talking chair and table, sitting and standing a little and having fun!

Physical Therapy Update

Liam had his Physical Therapy Appointment yesterday. It went really well. She did a lot of neat things with him to get him to play on the floor. Liam is very flexible and I forgot to mention in the last update that at his 1 year doctor appointment the peditrician thinks he has what Kyra Hope and Aryanna have. the Benign Congenital Ligament Laxity, which means their joints are really loose. Liam is so flexible that he can bend all his fingers backwards and his feet too. His legs bend all the way behind his head also just like Kyra Hope was, So the Physical Therapist said its going to take longer to work with him since he has this condition she also made these shorts out of an ace bandage that will constrict his legs from going over his head and that will teach him fast how to use his legs and get stronger instead of being so flexible. Liam has a lot of work ahead of him. She worked with him for a full hour and poor Liam looked worked but she has decided that Monday and Tuesdays will be good for 30 min sessions until he can build up to the hour. Liam looked like he was having fun playing with all the new toys and he did good for 45 min but was starting to get upset when he was tiring out. We are so happy that he is getting the help he needs so he can start being a "Normal Baby" I just have been so sad for him not being able to be crawl after his brother and sisters and he just watches and laughs when they run by. I can't wait for the day he is the one running by. Liam will be having Speach Therapy also i am waiting for that Therapist to call to set an appointment, I will update on that too. I posted more pictures of Liam i forgot to post in the last update.

FINALLY A UPDATE

I am so sorry its been a while, we have been so busy and i hardly have time to sit and update. Liam has been doing really well. He was sick on Halloween with a fever but i think it was from the 4 shots he got at his 1 year old check up earlier that morning. I will post his Halloween pictures soon.Liam had a Cardiology appt on October 24th and everything looks good, She didn't get a good look at the Glenn because he was moving around too much but she said he is doing well and his 02 sats are running 86 to 91. Liam had his RSV shot on November 5th and will get them monthly thru the RSV season, his next RSV shot is December 3rd. He will be getting his Flu shot on Wednesday. My poor baby and all his shots. Liam weighs 16 pounds and 2 ounces. Liam's first tooth popped thru on the bottom on Friday October 24th he is soo cute and another next to it looks like it will be in soon. Liam isn't cranky with the teeth but he is just not wanting to eat which is very frustrating to us. I have tried number 3 foods so he can get use to the texture but he really isn't ready to eat it since he chokes on it and throws everything up that he eats. I FINALLY GOT A PHYSICAL THERAPIST FOR LIAM!!! He is going Tomorrow at 9 am. I am soo happy. He was suppose to be there today at 9 am but i wrote down the wrong time for his appt so tomorrow is his first day. He will be going Monday and Tuesday every week or more after she evaluates him tomorrow. Liam can sit up but can't reach over to grab things or he will fall, I am hoping that withthis PT he can get stronger and start crawling before the summer. I want to Apologize for not posting sooner but after Liam's 1st Birthday we had our other childrens birthday to get ready for and we have been busy since. I am thankful that you leave comments and prayers still for Liam. These pictures are of Liam of the last couple months for his big 1st bday and some other pictures afterwards . I will be updating on his PT/ST appointment and other updates. I almost forgot, Liam is getting a big Vocabulary, he says Doggy, Baby, Ba Ba, ALL GONE!!! Whenever he finishes eating we say all gone and he says that when he doesn't want anymore food. He makes animal noises for a monkey and he says HEEEE HAW FOR A DONKEY ITS SOO CUTE! He can say clap as he claps his hands and he loves music and will hum to it if he hears some. Liam is so amazing and puts a smile on my face everyday.