Liam's Shots

Liam had his shots yesterday. they did 2 in each leg!!! my poor baby. He ended up with a fever last night and he was really cranky all night so we didn't get any sleep. All day today he was feverish but it finally broke about 2 today. I was actually getting kind of worried, I never had any problems with fevers with Jake or the girls after their shots so I am glad that he is doing so much better.Now he is awake and playing and smiling. He is back to sweet happy Liam. He will probably not go to sleep until later tonight since he slept all day. I called Early Interventions today because i wanted to see what they were all about and to see how they can help Liam and help me to get Liam on track since he still can't hold his head up very well and I know they said these babies are delayed. They told me that since he is near his next surgery and once he is healed and the doctors ok to do Physical Therapy to give them a call. I don't know if i would need them or if it would be good for him to go through that kind of therapy since his heart will probably get a work out. Thats going to be on the List of asking his Cardiologist and see what she says and thinks on February 4th. I will Post Pictures soon

Update

Today Liam had his doctors appointment. He recieved his RSV shot and was weighed he now weighs 9½ pounds and is 23 inches long his 02 stats are at 84. They first showed at 70 and the nurse got nervous and i said try again and it stayed at 84. Liam's next trip down to Miami won't be until his Heart Cath. Feb 4th he goes to his Cardiologist and she is going to look him over and schedule the Heart Cath. After they get the results, she will be calling the Surgeon and discussing when his next surgery is going to be and scheduling the date for it. Liam goes to the Pediatrician on Jan 22nd for his shots. I can't believe that Liam is going to be 4 months next week. I am so blessed to have such a good boy and to have been able to bring him home and have all this wonderful bonding time, him going in for this Heart Cath they told me has alot of risks of Heart Attack and other things can happen like a punctured lung or the heart and stroke , so i am very nervous about this Procedure and the Surgery especially that he has a higher risk for these surgeries and any procedures because of his coronary sinusoids. Please continue praying for Liam, he has such a long road ahead of him. More Pictures of him have been added to the bottom of the site
Thank You

Liam's echo

HAPPY HEALTHY NEW YEAR EVERYONE!! Hope your New Years was good with family and friends. Liam went to his appointment this morning and they did and EKG and Echo on him. Everything looked great, no leaky valves everything doing like it is suppose to, his conduit was also doing just fine. We didn't see his regular Cardiologist, so he wanted to see him in 2 months which i was worried about since he is being seen monthly, but he said that he should be fine. I see the Surgeon in 2 weeks January 16th, which is also my mothers birthday :). I will be posting more pictures soon, just trying to find time to do it, right now the kids are out for winter break so i will get them up maybe this weekend. Also Liam had a green thing on his chest, The cardiologist said it was just fine and should fall off soon just keep it dry, its a stitch that hasn't dissolved yet.
HAPPY 2008!!

MERRY CHRISTMAS AND HAPPY NEW YEAR

Hey everyone, Merry Christmas, I finally get to do my Christmas update. We had a wonderful day and delicious Christmas dinner. The kids were spoiled and Liam, he slept the whole day!!! Well last night I woke Liam up for his Medicine and to get him ready to eat and i noticed his eye looked funny so i turned on the light and he had this big red spot in the white of his eye. Today i took him to the doctor and they said that its a eye hemorrhage and its seen in people who are on anticoagulants and a sneeze cough or strain to go to the bathroom and vomiting can cause the pressure on the vein break. She said that its going to take a couple weeks to heal and if it gets worse or goes in the other eye to go see an ophthalmologist. So that was todays journey. Other than that Liam is just wonderful to be with and his eye doesn't bother he is just full of smiles. I will be posting Christmas pictures soon
We hope you had a blessed Christmas

PEDIATRICIAN APPOINTMENT

Liam went for his weight check and now we are confused because my doctors scale says that Liam weighs 9 pounds 4 oz and which is 4.2 kilos instead of 3.9 which is 8 pounds. So we still don't know who scale is right, I would pick the 9 pound 4oz one lol she says hers is correct. I don't know, but also Liam has this green thing where his chest incision is and she said it looks like a suture stitch that didn't dissolve, i am glad its not anything else. Well Liam is going to his Cardiologist a few days after Christmas so we will see what her scale says. I am going to try to post more Pictures soon.
Thank You for continuing to follow Liam's journey and the prayers they are greatly appreciated. I really need to see that since all thats on my mind is Liam's next surgery and its getting close and i have bonded so well with Liam and I am just don't know how strong I will be when i hand him back over to the doctors.

Liam's RSV shot

Finally yesterday Liam went for his RSV shot. He was smiling at the nurse and she couldn't give him the shot, she kept saying sorry Liam this is going to hurt but then she was like i can't give him this shot with him smiling at me like this. She waited and every time she go to give it to him he just shoot his big flirty smile, then she said sorry Liam sorry mom i have to do this well he screamed so loud i cried i never heard him scream like that, so i picked him up and gave him hugs, he actually cried for a few minutes.They said those shots really hurt. I can't believe he has to get that shot every month :( they weighed him and he was 3.9 kilos which is 8 pounds. Since last month he has only gained 5oz. So now we have to add the 1cc of vegetable oil to the 24 calorie formula to make it 30 calories because he didn't gain a full pound but at least he is gaining, slowly but surely. Tomorrow he has to go to his Pediatrician for a weight check, since she is watching his weight gain too. His next appointment is to see the Pediatric Cardiologist which is a few days after Christmas. Then down to Miami 2 and half weeks later to see his Surgeon. Nothing else new to report except Liam loves to smile, he just stares at you and when you make eye contact he can't stop smiling.

UPDATE

Sorry there haven't been any post, we have been getting ready for Christmas!. We are so excited and can't wait for the kids to open their presents and spend it with Liam and his first Christmas.
Liam is suppose to go next week for his RSV shot sometime, I have to call Monday to see what they scheduled for him, Also he has a weight check and a shot at the Peditricians on December 21st. Liam is such a good baby, we are so blessed to have him, he just loves to be held and watch his brother and sisters run around here crazy and he doesn't know what the 2 dogs are all about but he watches them wrestle and bark at each other. He only cries when he is hungry. Everything that he has been through since birth I didn't know how he was going to be, all i can say is he is such a GOOD bAby! Liam also has to be in Miami on January 16th to see his surgeon. I think after we go see the Cardiologist on December 28th, she will probably be reporting to the Surgeon, and then he is going to look Liam over and they will probably be deciding on the date of his next surgery. But i am not going to even talk about that right now, i am going to enjoy the holidays with him first!
Christmas pictures have been added to the website.